Howdy!
I have been getting a lot of
questions the last few weeks about how I am doing, how the surgery went, and
what the results of the surgery were. I am going to attempt to answer these
questions as well as I can, but please understand that I am still processing
this information and so if it come all jumbled up that is why. Also, this will
be a long post and it will have detail, so if you don't wanna know, just like
before, stop reading now.
How am I feeling?
If I am being honest I am
feeling pretty terrible. The surgery itself wasn't too horrible, I felt pretty
good the day of, and then a two days later I was in pain and I was feeling
light headed and it was not good. As a result, I pretty much just slept for a
week straight. I was only eating oatmeal and soup, becuase I was not having
regular bowel movements. I started having bleeding problems and was loosing
blood about a week and a half after surgery and this started to worry me. It
was not only blood clots but it was extremely painful and paralyzing. I spoke
to the doctor and he wanted me to just take it easy and wait to see him a few
days later.
How did the surgery go?
Up until this past
Wednesday, Dec. 14th, I did not know how the surgery has gone. Obviously, it
had gone well enough for me to be released to go home, but other than that I
had no idea until I had my post-op appointment. That being said, the surgery
took a bit longer than expected, it was supposed to only be an hour and it
wound up being 3 hours. But according to the doctor, it all went well, however
it did not fix any problems, but it did answer questions.
What were the results of the
surgery?
Now here is the fun part,
they found quite a few different things that were weren't Necessarily
expecting. I will say what was found and then explain what it is, In then I
will explain how it's supposed to be treated. The order of there are what we
are least worried about to most worried about. Two of the three are found
inside the uterus and the third is found on the outside, which I will explain
better below, but just remember 1 is slightly worried and 3 is very worried.
1. Uterine polyps: These
happen when the cells in the lining of the uterus becomes overgrown and can be
the size of a sesame seed to the size of a golf ball. These polyps can cause
multiple problems, for me they are the following;
Irregular menstrual
bleeding: basically this means that I have frequent and unpredictable periods
of the variable link and heaviness.
Bleeding between menstrual
periods: and This means that I pretty much pleaded whenever enter however long,
Which means that I don't actually have a quote on quote period, which are
excessively heavy and painful.
The doctor found quite
a few polyps and was able to remove them, however they are most likely to return
base on how many I had and the severity of them. The polyps are
estrogen-sensitive, which means the grow in response to circulating estrogen.
He said that now that he knows they are there it will be easier to treat and
keep on eye on.
2. Endometriosis: This
is an often painful disorder in which tissue that normally lines the inside of
your uterus grows on the outside of your uterus. Endometriosis most commonly
involves your ovaries Fallopian tubes in the tissue lining your pelvis. This
tissue is hormone based, this means that just like when the tissue in your
uterus sheds, the displaced tissue continues to act as it normally would
-- it thickens, breaks down, and pleads with each menstrual
cycle. Because this displays tissue has no way to exit your body it
becomes trapped.
For me, the endometriosis
was on my ovaries, pelvic tissue, and intestines. This explains the immense
amount of pain I am in every time I am bleeding. Endometriosis also causes many
other problems such as, pain with bowel movements, excessive bleeding, and
infertility. Since my case is on the more severe case we have to also keep an
eye on this, which is harder to do since it is in my abdomen. The doctor was
able to burn most of the endometriosis off and out of the pelvic cavity,
however this is a chronic illness and will come back.
3. The third and final thing
that they found doesn't really have a medical name like the others. When inside
the uterus, they found a large mass of abnormal mutated cells, they was it was
explained to me was that the cells have mutated 6 times with in the mass, so
basically it is a six layered cake of mutated cells. The doctor did a biopsy of
the tissue and sent it to pathology. When I saw him he explained to me that he
has never seen this in a patient my age, the youngest person he's ever seen and
was 49. He asked for my consent to send my case to other doctors to see if he
could get a better opinion of what to do next. Because with his
older patients, He would just do a full hysterectomy and call it good.
However since I am so young, he doesn't necessarily want to do this because it
will mess with my hormones. So right now I am kind of playing the waiting game.
My doctor told me what he thinks are the options, however he wanted to see you
play other doctors had in mind to see if they could have better options. Since
once again this tissue and the cell growth is it based on on The lining of the
uterus and hormones, we have to do something or it will continue to grow. These
are the options I have as of right now:
1. a
medication that will put me in a menopausal State so that the lining of the
uterus will stop growing.
2. A D&C ( dilation and curettage) This would be be burning the lining of the uterus is that it would no longer grow.
3. Hysterectomy.
This is the complete removal of the uterus.
Nothing has been
decided yet, and I won’t be deciding anything
until after the first of the year. This tissue is very complex and
it is high-risk. The more it grows the worse it will become, so we HAVE to be
on top of this and make sure that it is under control.
I know many of you are
now very concerned about me and what is going to happen, But please don’t be. I am somewhat at peace
with this. The day I found out about all of this, I was angry. The doctor said
this surgery should have been done five years ago, and all of this would’ve been avoided. No other
doctor wanted to treat my problems because of my age, And look at where it led
to, But it is okay.
I know that Heavenly Father is in control, and that His plan is greater than mine. He has
this under control, and as long as I am holding onto my hope and my testimony
nothing can shake me.
As for the game plan
right now, I went and saw my hematologist, blood doctor, and I have to once
again get iron infusions. My levels of hemoglobin and iron have dropped far
below where my doctor is comfortable so we have to get those numbers up, And
then I will not feel so faint and lightheaded. This should help me out quite a
bit and after we get that fixed we will move on and if make a larger game plan.
My next infusion is on Tuesday and I will post to Facebook/Instagram how that
goes.
I know many of you
have have questions comments and concerns, but please know that I am still
wrapping my head around all of this so keep that in mind when he you message
text or comment to me.
I appreciate everyone’s love and and support and
prayers. They have been greatly needed and I know that they have helped me be
at peace.
That is all for now I
will post more, when I know more. Love y’all!
Always smile!
Teasha
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